Resources

The following sites are great resources to learn about intellectual and developmental disabilities and find available resources, support and services for you or your family.

 

Note: Once you decide to visit any one of the sites, you will be leaving The Achievable Foundation website. The following material may or may not reflect the views of The Achievable Foundation and Health Center staff, people we serve, or the organization as a whole.

 


 

Association of Regional Center Agencies

An association representing California’s 21 independent nonprofit regional centers, which promotes, supports and advances regional centers in achieving the intent of the Lanterman Developmental Disabilities Services Act

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California Department of
Developmental Services

The agency in California that is responsible for providing services and supports to individuals with intellectual/developmental disabilities.

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California State Council on Developmental Disabilities

An independent state agency that is responsible for ensuring that people with developmental disabilities and their families receive the services and supports they need through advocacy, capacity building and systematic change.

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L.A. GOAL

A community organization that provides services and opportunities to people with developmental disabilities to help increase their independence and employability. L.A. GOAL also conducts art and outreach activities to educate the community about the abilities of people with disabilities

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Los Angeles Speech and Language
Therapy Center

A community organization providing evidenced-based innovative assessments, therapies and other services for children and adults

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Reach Across L.A.

A cross-system collaboration addressing the needs of individuals with co-occurring developmental disabilities and mental health disorders.

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State of the States in Developmental Disabilities Project

A project administered by the University of Colorado that gives information on financial and programmatic trends in intellectual and developmental disabilities services throughout the United States.

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University of California San Francisco, Office of Developmental Primary Care

A program within the Department of Family and Community Medicine that is dedicated to improving health outcomes for people with developmental disabilities across the lifespan by developing resources for clinical service, advocacy, research and training.

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Westside Family Resource and Empowerment Center

A support agency that provides information, resources and supports to parents, families, professional and members of the community in order to enhance the lives of people with special needs.

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Westside Regional Center

Our local regional center serving Western Los Angeles County.

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Additional Reference Material

Ehrenpreis, Brooke, “Care Coordination for California’s Children and Youth with Special Health Care Needs: Building Blocks from Other States,” Lucile Packard Foundation for Children’s Health, June 2014,
“CommunicateCARE: A Curriculum of Caring for People with Developmental Disabilities,”McMaster University, accessed December 2015, http://machealth.ca/programs/curriculum_of_caring/
Intro: A serious of videos and segments aimed at helping healthcare professionals effectively care for people affected by developmental disabilities.
“For Health, Safety, and a Better Life,” DDS Safety Net, accessed December 2015, http://ddssafety.net/
“In Transition: Seniors and Persons with Disabilities Reflect on Their Move to Medi-Cal Managed Care,”California HealthCare Foundation, April 2014,
“Our Lives, Our Health Care: Self Advocates Speaking About Our Experiences with the Medical System,”Office of Developmental Primary Care and Autistic Self Advocacy Network, April 2014
Health Center and Resource Services. “Chalktalk: The Health Center Program.”YouTube video, 3:38. August 28, 2015. https://www.youtube.com/watch?v=j80B4ckjOT8
National Association of Community Health Centers, Inc. “What is a Community Health Center?”YouTube video, 18:56. October 22, 2014. https://www.youtube.com/watch?v=NSGIrdNnRvw

Work Cited

Boyle, Coleen A., et al. “Trends in the Prevalence of Developmental Disabilities in US Children, 1997-2008.” Pediatrics 27, no. 6 (June 2011): 1034-1042.
Braddock, David L., Richard E. Hemp, Mary C. Rizzolo, Emily Shea Tannis, Laura Haffer, and Jiang Wu. State of the States in Intellectual and Developmental Disabilities: Emerging from the Great Recession. 10th edition. Washington, DC: American Association on Intellectual and Developmental Disabilities, 2015.
Buescher, Ariane V.S., Zuleyha Cidav, Martin Knapp, and David S. Mandell. “Costs of Autism Spectrum Disorders in the United Kingdom and the United States.” JAMA Pediatrics 168, no. 8 (2014): 721-728.
Centers for Disease Control and Prevention. Key Findings: Trends in the Prevalence of Developmental Disabilities in U.S. Children, 1997-2008. February 12, 2015. http://www.cdc.gov/ncbddd/developmentaldisabilities/features/birthdefects-dd-keyfindings.html (accessed February 1, 2016).
Developmental Disabilities Monitoring Network Surveillance Year 2010 Principal Investigators; Centers for Disease Control and Prevention. “Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years.” Morbidity and Mortality Weekly Report. Surveillance Summaries. 63, no. 2 (March 2014): 1-21.
Havercamp, Susan M., and Haleigh M. Scott. “National health surveillance of adults with disabilities, adults with intellectual disabilities and developmental disabilities, and adults with no disabilities.” Disability and Health Journal 8 (2015): 165-172.
Havercamp, Susan M., Donna Scandlin, and Marcia Roth. “Health disparities among adults with developmental disabilities, adults with other disabilities, and adults not reporting disability in North Carolina.” Public Health Reports 119, no. 4 (Jul-Aug 2004): 418-426.
National Association for the Dually Diagnosed (NADD). Information on Dual Diagnosis. http://thenadd.org/resources/information-on-dual-diagnosis-2/ (accessed February 1, 2016).
Rubenstein, Eric, Lisa D. Wiggins, and Li-Ching Lee. “A Review of the Differences in Developmental, Psychiatric, and Medical Endophenotypes Between Males and Females with Autism Spectrum Disorder.” Journal of Developmental and Physical Disabilities 27 (2015): 119-139.
State of California Department of Developmental Services. www.dds.ca.gov.
State of California Department of Developmental Services. Fact Book. 12th edition. Sacramento, California, January 2015.
State of California Department of Developmental Services. “Quarterly Consumer Characteristics Report.” June 2015.
Voelker, Rebecca. “Improved Care for Neglected Population Must be Rule Rather Than Exception.” JAMA: The Journal of the American Medical Association 288, no. 3 (July 2002): 299-301.